Cystic Fibrosis Foundation's Board Chair KC White Sheds Light on Disease and Progress in Care
Cystic Fibrosis Foundation's Board Chair KC White Sheds Light on Disease and Progress in Care
Cystic Fibrosis Foundation's Board Chair KC White Sheds Light on Disease and Progress in Care
Key Takeaways (TLDR)
The Cystic Fibrosis Foundation's research and treatments provide a competitive advantage for those with CF.
The Foundation funds research, drug development, and specialized care to improve the lives of those with CF.
The Foundation's work aims to provide all people with CF the opportunity to lead long, fulfilling lives.
KC White, the first person with CF to serve as board chair, is an inspiring advocate for the Foundation.
Why it Matters
This news matters because it raises awareness about the challenges and progress in the treatment of cystic fibrosis, a rare and life-shortening genetic disease. KC White's personal journey and the Foundation's efforts to advance care and treatment options provide hope for the CF community and highlight the importance of continued support and research for finding a cure.
Summary
The Cystic Fibrosis Foundation's Board Chair, KC White, recently participated in a media tour to shed light on the disease, her personal journey, and the Foundation's efforts to advance care and treatment options. CF is a rare, genetic disease impacting people of all races and ethnicities, with about 40,000 cases in the U.S. KC White, the first person with CF to serve as board chair, shared her inspiring story and discussed recent treatments known as modulators that have transformed the health of about 90% of the CF population. The Foundation is committed to finding a cure and providing long, fulfilling lives for all people with CF through funding research, advancing care, and supporting the CF community.
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